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WESA health and science reporter Sarah Boden is exploring how Pennsylvanians with dementia and their families navigate financial decision-making.

The Cost of Forgetting: The toll dementia takes on families and finances

Olga Deacon, who has dementia, speaks with her granddaughter, Chris Boyce, in a replica 1940s kitchen, Friday, Nov. 6, 2015, at The Easton Home in Easton, Pa. Nursing homes and assisted living facilities are increasingly using sight, sound and other sensory cues to stimulate memory in people with Alzheimer's disease and other forms of dementia.
Matt Rourke
/
AP
Olga Deacon, who has dementia, speaks with her granddaughter, Chris Boyce, on Friday, Nov. 6, 2015, at The Easton Home in Easton, Pa.

Money and dementia are two topics many Americans don't want to talk about. But ignoring the realities of the U.S.'s aging baby boomer population can have dire financial consequences for millions of Americans.

In fact, forgetting to pay bills is one of the earlier signs of dementia, according to a November 2020 study of 81,000 Medicare beneficiaries. Researchers found that people with Alzheimer's disease and related dementias started to develop subprime credit up to six years before a diagnosis.

People have the right to spend their own money how they want, even if they make risky choices because of dementia. However, some experts and advocates say that the financial industry and policymakers could do more to help individuals with cognitive decline protect their wealth.

Ignoring the taboo topics of illness, disability and money can result in serious consequences for many of the 500,000 Americans who are diagnosed with dementia every year. It also creates a greater burden for families and taxpayers.

Sarah Boden, a health and science reporter for 90.5 WESA, is exploring how these issues affect Pennsylvanians with dementia and their families. Therefore, she wants to hear from you. If you're open to sharing your thoughts on financial caregiving with WESA, please fill out this form.

Facts about dementia:

  • One in nine Americans aged 65 or older has Alzheimer's disease, the most common form of dementia; that's according to the Alzheimer's Association which finds that two out of three people with the disease are women. 
  • The National Council on Aging estimates that up to $36.5 billion is lost annually due to the financial abuse of older adults. 
  • In 2021, memory care costs averaged $6,935 a month, according to the AARP.
  • In Pennsylvania, Medicaid only pays for memory care in nursing homes, not assisted living facilities.

This story is part of a reporting fellowship sponsored by the Association of Health Care Journalists and supported by The Commonwealth Fund.

Sarah Boden covers health and science for 90.5 WESA. Before coming to Pittsburgh in November 2017, she was a reporter for Iowa Public Radio. As a contributor to the NPR-Kaiser Health News Member Station Reporting Project on Health Care in the States, Sarah's print and audio reporting frequently appears on NPR and KFF Health News.